My son Haydin is almost 14 months and has a condition called Hydranencephaly where his brain didn't form completely due to veins in his neck being blocked. He has a 75% brain loss and doctors give the grim out look of him not making it to see him 2nd Birthday. Haydin is the happiest, silliest, and cutest kid I know and the fact that he can smile and laugh through all the bad inspires me. He got a shunt placement surgery when he was 4 months old and that has been his only surgery to date. Haydin has weekly physical therapy and begins special education school in the fall, were so excited to take that big step! Haydin has his mind currently set on walking (even though he has little to no head control) he wants to do things like the big kids and I know one day he will. We recently found out that Haydin can only see lights and see blurs of shapes, but his hearing is perfect. Everyday is a blessing with him, he is and will always be my miracle!
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